‘I can’t use the cooker safely due to fatigue. On bad days I can’t prepare anything. I rely on microwave meals or family cooking for me’
Can you wash yourself?
‘Yes’
‘I need grab rails and a seat in shower. It exhausts me for hours. Some days I can’t face it at all. I need help washing my hair.’
Bringing Someone With You
Who to Bring
Good Choices
Why
Family member
Sees your daily struggles
Carer
Professional perspective
Support worker
Understands your needs
Friend
Can speak up for you
Their Role
They Can
They Can’t
Provide support
Answer questions for you
Take notes
Dominate conversation
Remind you of things
Contradict you
Give their perspective
Be aggressive
Help you stay calm
Give medical opinions
Tell Assessor
At Start
Say
Introduce companion
‘This is X, they help care for me’
Ask they can contribute
‘They see me at my worst’
After the Assessment
What Happens Next
Stage
Timeframe
Assessor writes report
Days
DWP makes decision
Weeks
Letter sent
4-8 weeks typically
Decision explained
In letter
If Turned Down or Disagree
Step
Action
1
Request mandatory reconsideration
2
Write why you disagree
3
Provide more evidence
4
DWP reviews
5
If still disagree, appeal to tribunal
Success Rates
Stage
Success Rate
Mandatory reconsideration
~20% changed
Tribunal appeal
~70% successful
Worth appealing
Evidence supports it
Summary: PIP Assessment Preparation
Before Assessment
Task
Done
Gather medical evidence
☐
List all conditions
☐
Note all medications
☐
Think through each activity
☐
Prepare bad day examples
☐
Arrange companion
☐
During Assessment
Remember
Check
Describe worst days
☐
Explain variability
☐
Don’t downplay
☐
Include consequences
☐
Be specific
☐
Let companion add
☐
Key Phrases to Use
Instead of
Say
‘I manage’
‘I struggle with…’
‘I can do it’
‘I can only do it if/when…’
‘It’s okay’
‘It causes pain/exhaustion/risk’
‘I cope’
‘I need help from X to…’
If Unsuccessful
Action
Deadline
Mandatory reconsideration
1 month from decision
Tribunal appeal
1 month from MR decision
Get help
Citizens Advice, welfare rights
Key Contacts
Service
Help With
Citizens Advice
Free advice, form help
Scope
Disability rights
Turn2us
Benefits advice
Local welfare rights
Expert support
Disability Benefits Centre
DWP queries
PIP assessments are about function, not diagnosis. The key is communicating clearly how your condition affects your daily life — especially on difficult days. Bring evidence, bring support, and don’t downplay your struggles. If you’re refused, don’t give up — the appeal success rate shows many initial decisions are overturned.